Prosthesis (Apr 2021)

Co-Creation Facilitates Translational Research on Upper Limb Prosthetics

  • Hannah Jones,
  • Sigrid Dupan,
  • Maxford Coutinho,
  • Sarah Day,
  • Deirdre Desmond,
  • Margaret Donovan-Hall,
  • Matthew Dyson,
  • Thea Ekins-Coward,
  • Laurence Kenney,
  • Agamemnon Krasoulis,
  • Doug McIntosh,
  • Kaveh Memarzadeh,
  • Edward Small,
  • Gemma Wheeler,
  • Hancong Wu,
  • Kianoush Nazarpour

DOI
https://doi.org/10.3390/prosthesis3020012
Journal volume & issue
Vol. 3, no. 2
pp. 110 – 118

Abstract

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People who either use an upper limb prosthesis and/or have used services provided by a prosthetic rehabilitation centre, hereafter called users, are yet to benefit from the fast-paced growth in academic knowledge within the field of upper limb prosthetics. Crucially over the past decade, research has acknowledged the limitations of conducting laboratory-based studies for clinical translation. This has led to an increase, albeit rather small, in trials that gather real-world user data. Multi-stakeholder collaboration is critical within such trials, especially between researchers, users, and clinicians, as well as policy makers, charity representatives, and industry specialists. This paper presents a co-creation model that enables researchers to collaborate with multiple stakeholders, including users, throughout the duration of a study. This approach can lead to a transition in defining the roles of stakeholders, such as users, from participants to co-researchers. This presents a scenario whereby the boundaries between research and participation become blurred and ethical considerations may become complex. However, the time and resources that are required to conduct co-creation within academia can lead to greater impact and benefit the people that the research aims to serve.

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