A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis

Abstract

Purpose Bronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of young people with bronchiectasis. Method A qualitative study using semi-structured interviews explored fifteen young people’s perspectives of life with bronchiectasis. Key themes were identified using an inductive iterative approach through constant comparative analysis guided by Thorne’s interpretive description. Results Life with bronchiectasis was conceptualized by participants as “Pretty Normal”. This consisted of two co-existing life views which represented how young people balanced the ups and downs of adolescence while learning to accommodate the demands of living with bronchiectasis. Three key thematic elements “sore and tired”, ‘life interrupted and “looking after self”, influenced and challenged these two views of life. Conclusions Young people with bronchiectasis portray life as being the same as their peers. Despite this, they recognized that the symptoms, interruptions, and self-management responsibilities led them to find ways of coping and integrating their experience into a new and modified view of normal.

Keywords

• bronchiectasis
• youth
• interpretive description
• normal life