FHIR-Datenmodell zur Übermittlung von Tumordaten zwischen Krebsregistern und IQTIG

Abstract

This project aimed at the implementation of an information model and a corresponding HL7 FHIR data model for the transmission of tumor data between cancer registries and the Institute for Quality Assurance and Transparency in Healthcare (IQTIG). The project is based on a concept study from IQTIG focusing on a future quality assurance measure of the treatment of patients with localized prostate cancer. In this study quality aspects have been developed, which means that different topics of interest have been adressed, but no specific quality indicators were developed. Based on the quality aspects possible data fields have been extracted which might be necessary for future quality indicators. Upon those information entities an information model was designed. Basn the information model a data model in HL7 FHIR has been developed and validated against a validation engine provided by the online platform Simplifier. This work shows the difference between an informaodel and a data model. The information model is crucial for establishing a common understanding between all stakeholders supporting interoperability. The data model is important for the underlying technology, but does not necessarily explain the overall process. Hence, informatnd data model complement each other. The theroretical work presented in this paper will be the basis for further projects. A following projell use the data model to transfer tumor data between the clinical cancer registry of Lower Saxony and the IQTIG.