Socio-Demographics, Pain Characteristics, Quality of Life and Treatment Values Before and After Specialized Interdisciplinary Pain Treatment: Results from the Danish Clinical Pain Registry (PainData)

Abstract

Henrik Bjarke Vaegter,1,2 Lars Oxlund Christoffersen,3 Thomas Peter Enggaard,4 Dorte Elise Møller Holdggard Snr,5 Tram Nguyen Lefevre,6 Randi Eltved,7 Christina Høegh Reisenhus,8 Torsten Wentzer Licht,9 Mette Mebus Laustsen,10 Susanne Haase Hansson,11 Per Føge Jensen,12 Thomas Rene Friis Larsen,13 Stephan Alpiger,14 Bibsen Guldhammer Mogensen,15 Mette Terp Høybye16,17 1Pain Research Group, Pain Center, Odense University Hospital, Odense, Denmark; 2Department of Clinical Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark; 3Danish Regions, Copenhagen, Denmark; 4Interdisciplinary Pain Center, Sjællands University Hospital Køge, Køge, Denmark; 5Interdisciplinary Pain Center, University Hospital Aalborg, Aalborg, Denmark; 6Interdisciplinary Pain Center Allévia, Aarhus, Denmark; 7Pain Clinic, Regional Hospital Silkeborg, Silkeborg, Denmark; 8Interdisciplinary Pain Center, Lillebaelt Hospital, University Hospital of Southern Denmark, Odense, Denmark; 9Pain Clinic, Friklinikken, Grindsted, Denmark; 10Interdisciplinary Pain Center, Holbæk Hospital, Holbæk, Denmark; 11Interdisciplinary Pain Center, Næstved Hospital, Næstved, Denmark; 12Interdisciplinary Pain Center, Gentofte Hospital, Gentofte, Denmark; 13Interdisciplinary Pain Center, Rigshospitalet, Denmark; 14The Private Pain Clinic, Herlev, Denmark; 15CFR Capio, Skørping, Denmark; 16Interdisciplinary Research Unit, Elective Surgery Center, Silkeborg Regional Hospital, Silkeborg, Denmark; 17Interacting Minds Centre, Department of Clinical Medicine, Aarhus University, Aarhus, DenmarkCorrespondence: Henrik Bjarke VaegterPain Research Group, Pain Center, Odense University Hospital, Heden 7-9, Indgang 200, Odense, DK-5000, DenmarkTel [phone]Fax [phone]Email [email protected] and Aims: PainData is an electronic internet-based clinical pain registry established to improve the understanding and treatment of high-impact chronic pain. The primary aim of this paper is to describe socio-demographics, pain characteristics, quality of life, and treatment values at baseline and follow-up in individuals referred to public and private interdisciplinary pain centers in Denmark between 2018 and 2020.Methods: Self-reported patient-reported outcomes collected through PainData before (n=12,257) and after (n=4,111) treatment across 13 public and private interdisciplinary specialized pain centers in Denmark (87% of all pain centers in Denmark) are described.Results: Mean duration of pain was 10 years, and one in three patients reported chronic widespread pain. More than 40% reported opioid use, and 50% had tried four or more different treatment modalities prior to referral. More than 60% reported poor sleep, severe fatigue, and memory and/or concentration deficits. Mean scores on pain catastrophizing, fear of movement, and pain-related disability were high, whereas scores on pain acceptance and self-efficacy were low. Physical and mental health were rated as poor and fair, respectively. One in four patients reported being very much improved or much improved after treatment. Items commonly reported after treatment were increased knowledge about pain, emotions and mood (66.5%), being better at accepting life with chronic pain (63.1%), and improved activity pacing (60.6%).Conclusion: The PainData registry, containing data from a large cohort of individuals, can help to improve the understanding and treatment of high-impact chronic pain, and collaborations with other researchers are welcome.Keywords: chronic pain, registry, PainData, questionnaires

Keywords

• chronic pain
• registry
• paindata
• questionnaires