Adverse Childhood Experiences (ACEs) in Adults with Cystic Fibrosis

Abstract

Catherine O’Leary,1 Vivien Edwards,1 Katherine A Hardcastle,2 Anna McCulloch,1 Jamie M Duckers1 1All Wales Adult Cystic Fibrosis Service, Cardiff and Vale University Health Board, Llandough, UK; 2Policy and International Health, WHO Collaborating Centre on Investment for Health & Well-being, Public Health Wales, Wrexham, UKCorrespondence: Catherine O’Leary, Email [email protected]: This exploratory study examines the prevalence of adverse childhood experiences (ACEs) in adults with cystic fibrosis (CF).Design: Childhood exposure to 16 ACEs was measured during an annual review assessment (N = 80).Methods: CF patients (n = 80) attending the All Wales Adult CF Service for a routine annual review assessment completed an adapted version of the Centers for Disease Control and Prevention (CDC) short-form ACE questionnaire alongside measures of psychological well-being.Results: In this sample, 65 (78%) reported at least one type of childhood adversity and 11 (14%) experienced four or more ACEs. Parental divorce or separation and verbal abuse were the most frequently reported ACEs. Illness related trauma in childhood was also prevalent with 52 (64%) reporting having experienced a painful or frightening medical procedure and 23 (28%) feeling forced to have treatment or a procedure.Conclusion: Individuals with CF reported a number of childhood traumas including trauma relating to medical procedures. Those with a history of ACEs may have increased risks of emotional and physical difficulties and may benefit from additional support from the CF psychosocial team.Keywords: adverse childhood experiences, ACEs, cystic fibrosis, trauma, ACE, CF

Keywords

• adverse childhood experiences aces cystic fibrosis trauma