Exploring occupational participation in children with epidermolisys bullosa integrated into the chilean educational system.

Abstract

This study explores the occupational participation of children with Epydermolisys Bullosa (E.B.) dystrophic and junctional in the educational area, which because of their health condition, are considered as student with Special Educational Needs (SEN). With the aim to know how satisfactory is the integration and whether it has the necessary support, the study carried out, through a qualitative and exploratory focus, on three selected cases with the established selection criteria. Through a pragmatic analysis of data obtained during the field work, the Short Child Occupational Self Assessment (S.C.O.P.E.) is used, from the Model of Human Occupation (M.O.H.O.), some conclusions emerge, which are structured and based on the model announced. The importance and relevance of studying this subject from Occupational Therapy is given by the pertinence of the intervention and contribution to E.B. in people who live this condition, even though it as a low incidence in general population from an epidemiological perspective, because they need a multidisciplinary and integral intervention to mitigate the impact caused by thedisease in all occupational areas.